Sydni’s Story

I’m Syd, I have a million interests an I am passionate about everything! I have always loved people and nature. Since the age of six, I had several episodes of unexplained illnesses increasing in severity and length of hospital stays. In 2017 migraines prompted the doctors to do an MRI on my brain and spine, I was officially diagnosed with Familial Hemophagocytic Lymphohistiocytosis (Familial HLH) in March 2018. Familial HLH is a rare disorder of the immune system.

In July of 2018 I underwent a bone marrow transplant. I celebrated 100 days post transplant with my Bald Beauties Project photo shoot! Losing my hair has brought me empowerment and I know know that love and beauty will always be within, no matter the circumstance. My outlook is to believe in the human connection for growth and healing.

Follow Sydni’s story at: https://www.caringbridge.org/visit/sydnilee

Sydni’s Gallery